Just a few minutes ago I received word there was another update on Sean’s condition.  Sorry, I took out a few minutes to post a response to Terri before posting here. Why? Well, I’ll explain that after you read this:

From The Home Computer

Posted at approximately 10:15 pm

Sean had another stable day. He has been fighting a fever but he is doing better. His ICP still climbs and has to be managed with meds but it is more manageable every day.

Tonight we moved out of the room. Kyle and Kayla left out of town for a night for a much needed break. Kiersten and I came home at 9 after moving everything out of our waiting room and saying goodnight to Sean. Vince will stay at the hospital with Sean until 2am. I will attempt to sleep soon and return to Sean at 6am if I can possibly stay away that long. I know we are doing the right thing because Vince and I are so exhausted we can hardly stand it and we have to get some sleep but honestly this is one of the hardest things that I have ever done. My heart hurts so bad right now because I can’t stand to be away from Sean while is is still so critical. I know that God is holding him, I know that God will see him through this and I believe that God was nudging us out the door because when we left the waiting room was full of other families that need the space. I know all of this but the mom in me can’t bear to be away from my boy. Also I don’t want to be away from Vince as he is tired and I don’t want him to be alone.

Please excuse my weakness tonight I’m tired and I need for Sean to be well. I am sure that the morning will bring a better outlook. Please pray for us as we attempt this transition. God will see us all through this we just have to have faith and accept the comfort that God has for all of us.
Goodnight prayer warriors.

Love,
Terri, Vince, Sean, Kiersten, Kyle & Kayla

And this was my response:

Terri, I wish I could give you advice, but I don’t have any. This goes back to when the kids were just babies and having a tough time sleeping through the night. Z[-dude] never had a problem, Ry[-guy] did. It absolutely killed me to follow the pediatrician’s nurse’s advice which was to leave him in a room without contact. It went against every grain in my body. I was in absolute misery and just a few months later, Jamie and Paul, the characters on “Mad About You” (remember that show?) aired a special that dealt with that entire issue and I relived it. The grief was indescribable except that I can tell you it felt like someone was cutting my heart out and then stomping on it with steel toed boots. But when I spoke to the doctor he said that I should have talked to him, he never would have advised me to have done that. He said that if it’s that difficult, it’s just not time. There was nothing wrong with having that bond between mother and child and what purpose did it serve to severe it? Hearing you say these things reminds me of that pain. So, upon the advice of a very wise man and the wisdom of mothers around the world, if it hurts this much, then why? Logic? Is it really logical to hurt like this? Are you truly going to get a better night’s sleep being at home, twenty minutes away from the hospital, staggering the time between you and your number one supporter, your husband and father of your child? Follow you heart and in the meantime, we will be lifting all of you up. I wish I had a motorhome to drive into [the hospital's] lot because I’d be there in a second. Maybe I can hotwire the neighbor’s RV, think they’d notice?

Follow your heart. Many blessings, much love and endless peace for all of you.

Do you have anything to share in support of Terri and Vince? Even though Sean’s condition is going into a more steady state, it’s not out of being critical. Now, more than ever, his family needs to be well-rested. But will this happen by being at home in their own beds, staggering their time at the hospital and being separated as a result? What do you have to add that might be of help to them? Or maybe we can lift them up in prayer, let God guide them. Yes. Let’s do that.